{"id":7927,"date":"2021-10-31T09:51:00","date_gmt":"2021-10-31T08:51:00","guid":{"rendered":"https:\/\/eraportal.ecomcapsule.com\/demohorizont\/podujatie\/budovanie-europskeho-ekosystemu-v-oblasti-zriedkavych-ochoreni\/"},"modified":"2024-01-25T18:25:22","modified_gmt":"2024-01-25T17:25:22","slug":"budovanie-europskeho-ekosystemu-v-oblasti-zriedkavych-ochoreni","status":"publish","type":"podujatie","link":"https:\/\/eraportal.sk\/horizont-europa\/podujatie\/budovanie-europskeho-ekosystemu-v-oblasti-zriedkavych-ochoreni\/","featured_media":4100,"template":"","oblast-horizont":[181],"class_list":["post-7927","podujatie","type-podujatie","status-publish","has-post-thumbnail","hentry","oblast-horizont-klaster-1-zdravie"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v24.4 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Budovanie eur\u00f3pskeho ekosyst\u00e9mu v oblasti zriedkav\u00fdch ochoren\u00ed - Horizont Eur\u00f3pa<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/eraportal.sk\/horizont-europa\/podujatie\/budovanie-europskeho-ekosystemu-v-oblasti-zriedkavych-ochoreni\/\" \/>\n<meta property=\"og:locale\" content=\"sk_SK\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Budovanie eur\u00f3pskeho ekosyst\u00e9mu v oblasti zriedkav\u00fdch ochoren\u00ed - 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Pacienti a ich rodiny ako osoby najviac postihnut\u00e9 zriedkav\u00fdmi chorobami bud\u00fa ma\u0165 \u00fastredn\u00fa \u00falohu a predstavia svoje potreby a po\u017eiadavky. Z\u00e1stupcovia v\u00fdskumu a akademickej obce, ako aj lek\u00e1ri a opatrovatelia sa podelia o&nbsp;svoje sk\u00fasenosti, ktor\u00e9 vznikaj\u00fa pri ich ka\u017edodennej \u010dinnosti. Priemysel poskytne svoje n\u00e1zory na to, ako naplno vyu\u017ei\u0165 kapacity v prospech pacientov so zriedkav\u00fdmi ochoreniami. Vyst\u00fapia tie\u017e tvorcovia polit\u00edk a predstavia, ako in\u0161tit\u00facie E\u00da pracuj\u00fa na vytvoren\u00ed ekosyst\u00e9mu zriedkav\u00fdch chor\u00f4b a bud\u00fa informova\u0165 o&nbsp;pl\u00e1novan\u00fdch iniciat\u00edvach v&nbsp;tejto oblasti vr\u00e1tane pripravovan\u00e9ho <a href=\"https:\/\/ec.europa.eu\/info\/research-and-innovation\/research-area\/health-research-and-innovation\/rare-diseases_en\" target=\"_blank\" rel=\"noreferrer noopener\">eur\u00f3pskeho partnerstva pre zriedkav\u00e9 ochorenia<\/a>.<\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><a href=\"https:\/\/sciencebusiness.net\/events\/european-rare-disease-ecosystem-collaborative-path-forward\" target=\"_blank\" rel=\"noreferrer noopener\">Bli\u017e\u0161ie inform\u00e1cie a registr\u00e1cia<\/a><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><a href=\"https:\/\/eraportal.sk\/horizont-europa\/heu-globalne-vyzvy\/heu-zdravie\/#tabs_desc_62554_2\" target=\"_blank\" rel=\"noreferrer noopener\">Kontakt na Slovensku<\/a><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p><\/p>\n<!-- \/wp:paragraph -->\n\n<!-- wp:paragraph -->\n<p>Zdroj: Science|Business, 03.11.2021, mob<\/p>\n<!-- \/wp:paragraph -->","kratky_opis":"9. 11. 2021 od 14:00 h. - medzin\u00e1rodn\u00e1 konferencia - online","zaciatok_datum":"2021-11-09 14:00:00","koniec_datum":"2021-11-09 18:00:00","typ_podujatia":"Konferencia","organizator":"Alexion","miesto_konania":"online","stat":"","odkaz_na_webovu_stranku":"","oblast":[181],"register":false,"zobrazit_velke_v_newsletteri":false,"reminder":false,"url_adresa_meetingu":"","newsletter_thumbnail":null},"_links":{"self":[{"href":"https:\/\/eraportal.sk\/horizont-europa\/wp-json\/wp\/v2\/podujatia\/7927","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/eraportal.sk\/horizont-europa\/wp-json\/wp\/v2\/podujatia"}],"about":[{"href":"https:\/\/eraportal.sk\/horizont-europa\/wp-json\/wp\/v2\/types\/podujatie"}],"acf:term":[{"embeddable":true,"taxonomy":"oblast-horizont","href":"https:\/\/eraportal.sk\/horizont-europa\/wp-json\/wp\/v2\/oblast-horizont\/181"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/eraportal.sk\/horizont-europa\/wp-json\/wp\/v2\/media\/4100"}],"wp:attachment":[{"href":"https:\/\/eraportal.sk\/horizont-europa\/wp-json\/wp\/v2\/media?parent=7927"}],"wp:term":[{"taxonomy":"oblast-horizont","embeddable":true,"href":"https:\/\/eraportal.sk\/horizont-europa\/wp-json\/wp\/v2\/oblast-horizont?post=7927"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}